Impact of COVID-19 pandemic on pediatric patients with epilepsy – The caregiver perspective.
In: Epilepsy & Behavior, Jg. 113 (2020-12-01), S. N.PAG
academicJournal
Zugriff:
• Seizure frequency remained stable for most patients during the lockdown period. • Comorbidities such as behavioral and sleep disorder were more affected than epilepsy. • Due to lockdown, visits were canceled/postponed for 41.0%. • Patients/caregivers who had remote consultation were mostly satisfied. • Most of patients/caregivers are willing to embrace telemedicine for epilepsy care. The recent COVID-19 pandemic has disrupted care systems around the world. We assessed how the COVID-19 pandemic affected children with epilepsy in Italy, where lockdown measures were applied from March 8 to May 4, 2020. We compiled an Italian-language online survey on changes to healthcare and views on telehealth. Invitations were sent to 6631 contacts of all patients diagnosed with epilepsy within the last 5 years at the BambinoGesù Children's Hospital in Rome. Of the 3321 responses received, 55.6% of patients were seizure-free for at least 1 year before the COVID-19-related lockdown, 74.4% used anti-seizure medications (ASMs), and 59.7% had intellectual disability. Only 10 patients (0.4%) became infected with Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV-2). Seizure frequency remained stable for most patients during the lockdown period (increased in 13.2%; decreased in 20.3%), and seizure duration, use of rescue medications, and adherence to treatment were unchanged. Comorbidities were more affected (behavioral problems worsened in 35.8%; sleep disorder worsened in 17.0%). Visits were canceled/postponed for 41.0%, but 25.1% had remote consultation during the lockdown period (93.9% were satisfied). Most responders (67.2%) considered continued remote consultations advantageous. Our responses support that patients/caregivers are willing to embrace telemedicine for some scenarios. [ABSTRACT FROM AUTHOR]
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Impact of COVID-19 pandemic on pediatric patients with epilepsy – The caregiver perspective.
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Autor/in / Beteiligte Person: | Trivisano, Marina ; Specchio, Nicola ; Pietrafusa, Nicola ; Calabrese, Costanza ; Ferretti, Alessandro ; Ricci, Riccardo ; Renzetti, Tommaso ; Raponi, Massimiliano ; Vigevano, Federico |
Zeitschrift: | Epilepsy & Behavior, Jg. 113 (2020-12-01), S. N.PAG |
Veröffentlichung: | 2020 |
Medientyp: | academicJournal |
ISSN: | 1525-5050 (print) |
DOI: | 10.1016/j.yebeh.2020.107527 |
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