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Background: Globally, economically developed countries face similar ageing demographics and the challenge of a 'care gap', yet they vary due to different care and formal support systems, and different cultural and societal norms around illness and care. The aim of this exploratory study was to examine cross-country variations in caregiver motivations, willingness, values, meaning in life, illness beliefs, and experiences of wellbeing, gain, health-related quality of life, burden and depression, across 6 European countries and Israel. Cross-country differences in the above-mentioned informal caregiver experiences are rarely described.

Methods: An online survey (ENTWINE-iCohort) was conducted using validated measures wherever possible. This paper utilises data from 879 caregivers and seven countries (Greece, Italy, the Netherlands, Poland, Sweden, the UK, and Israel).

Results: No consistent finding supporting the concurrent relationship between caregiver support policies/country culture and caregiver motivations/willingness was found. Caregivers in countries typically characterised by individualist cultures reported lower familism, higher self-enhancement values, and greater perceived illness threat compared to more collectivist countries. Search for meaning was higher in poorer countries than in wealthier countries. Higher negative caregiver experiences (e.g., burden) and lower positive experiences (e.g., wellbeing) were generally observed in countries with underdeveloped caregiver support as compared to countries with more developed formal support systems.

Conclusions: Cross-country variations can be explained to varying degrees by national policies around care (or their absence) and country cultural contexts. The results emphasise the importance of formal support services for achieving positive caregiver experiences, and help inform the development of policies and measures to support caregivers in Europe and Israel.

Titel:	Cross-country variations in the caregiver role: evidence from the ENTWINE-iCohort study.
Autor/in / Beteiligte Person:	Zarzycki, M ; Vilchinsky, N ; Bei, E ; Ferraris, G ; Seddon, D ; Morrison, V
Link:	Full Text Finder (Volltext)
Zeitschrift:	BMC public health, Jg. 24 (2024-03-26), Heft 1, S. 898
Veröffentlichung:	London : BioMed Central, [2001-, 2024
Medientyp:	academicJournal
ISSN:	1471-2458 (electronic)
DOI:	10.1186/s12889-024-18302-6
Schlagwort:	Humans Europe Netherlands Greece Caregivers Quality of Life
Sonstiges:	Nachgewiesen in: MEDLINE Sprachen: English Publication Type: Journal Article Language: English [BMC Public Health] 2024 Mar 26; Vol. 24 (1), pp. 898. <i>Date of Electronic Publication: </i>2024 Mar 26. MeSH Terms: Caregivers* ; Quality of Life* ; Humans ; Europe ; Netherlands ; Greece References: Int Psychogeriatr. 2012 Nov;24(11):1816-26. (PMID: 22652014) ; Int J Aging Hum Dev. 2010;71(4):283-303. (PMID: 21261136) ; Spinal Cord. 2008 Apr;46(4):287-92. (PMID: 17909558) ; J Psychosom Res. 2015 Dec;79(6):506-13. (PMID: 26541550) ; Aging Ment Health. 2010 Mar;14(2):193-202. (PMID: 20336551) ; Int J Environ Res Public Health. 2022 Jan 12;19(2):. (PMID: 35055644) ; Psychol Methods. 2002 Jun;7(2):147-77. (PMID: 12090408) ; J Gerontol B Psychol Sci Soc Sci. 2010 Jan;65B(1):5-13. (PMID: 19934166) ; J Popul Ageing. 2012 Jun;5(2):135-146. (PMID: 22662025) ; Int Psychogeriatr. 2010 Feb;22(1):43-55. (PMID: 19772684) ; Soc Sci Med. 2017 Jan;173:72-80. (PMID: 27930918) ; Annu Rev Psychol. 2009;60:549-76. (PMID: 18652544) ; Int J Nurs Stud. 2018 Mar;79:1-26. (PMID: 29128685) ; Innov Aging. 2020 Sep 15;4(6):igaa045. (PMID: 33241124) ; Gerontologist. 2008 Dec;48(6):752-71. (PMID: 19139249) ; Gerontologist. 1997 Jun;37(3):342-54. (PMID: 9203758) ; Psychol Sci. 2014 Feb;25(2):422-30. (PMID: 24335603) ; Dementia (London). 2019 Apr;18(3):882-902. (PMID: 28201932) ; Int J Environ Res Public Health. 2020 Dec 19;17(24):. (PMID: 33352669) ; Psychol Health. 2010 Apr;25(4):451-63. (PMID: 20204941) ; J Clin Psychol. 1964 Apr;20:200-7. (PMID: 14138376) ; J Med Internet Res. 2022 Jul 22;24(7):e36727. (PMID: 35867388) ; Health Psychol Rev. 2023 Jun;17(2):247-276. (PMID: 35081864) ; Int J Geriatr Psychiatry. 2012 Nov;27(11):1195-202. (PMID: 22334416) ; Qual Life Res. 2011 Dec;20(10):1727-36. (PMID: 21479777) ; J Adv Nurs. 2015 Jun;71(6):1378-91. (PMID: 25403434) ; J Adv Nurs. 2015 Jun;71(6):1417-34. (PMID: 25250659) ; Hallym Int J Aging HIJA. 2008 Jan 1;10(2):139-160. (PMID: 20930949) ; Aging Ment Health. 2020 May;24(5):784-788. (PMID: 30621433) ; JMIR Aging. 2018 Dec 18;1(2):e11051. (PMID: 31518244) ; Curr Alzheimer Res. 2012 Oct;9(8):902-12. (PMID: 22742853) ; J Psychosom Res. 2006 Jun;60(6):631-7. (PMID: 16731240) ; J Am Geriatr Soc. 1983 Dec;31(12):721-7. (PMID: 6418786) ; Scand J Public Health. 2001 Jun;29(2):113-21. (PMID: 11484863) ; Neurosci Biobehav Rev. 2017 Feb;73:123-164. (PMID: 27986469) ; Health Policy. 2021 Apr;125(4):436-441. (PMID: 33602532) ; Health Psychol Rev. 2023 Jun;17(2):344-376. (PMID: 35383541) ; Aging Ment Health. 2022 Aug;26(8):1589-1596. (PMID: 34010061) ; Health Econ. 2015 Mar;24 Suppl 1:89-103. (PMID: 25760585) ; PLoS One. 2020 Dec 10;15(12):e0243502. (PMID: 33301483) ; PLoS One. 2018 Mar 8;13(3):e0194232. (PMID: 29518147) ; Am J Epidemiol. 2018 Jul 1;187(7):1401-1410. (PMID: 29394307) ; J Aging Soc Policy. 2011 Oct;23(4):335-53. (PMID: 21985063) ; Healthcare (Basel). 2021 Dec 22;10(1):. (PMID: 35052175) ; Dement Geriatr Cogn Disord. 2010;30(6):469-78. (PMID: 21252540) ; Med Decis Making. 2014 Jan;34(1):8-20. (PMID: 23525701) ; J Nurs Scholarsh. 2013 Dec;45(4):412-24. (PMID: 24024758) ; Gerontologist. 2001 Oct;41(5):652-7. (PMID: 11574710) ; Annu Rev Public Health. 2002;23:151-69. (PMID: 11910059) ; Scand J Public Health. 2018 Jun;46(4):436-447. (PMID: 28823224) ; Dementia (London). 2020 Apr;19(3):640-660. (PMID: 29929383) ; Health Psychol Behav Med. 2021 Jul 13;9(1):636-661. (PMID: 34345534) Grant Information: 814072 Horizon 2020 Framework Programme; 814072 Horizon 2020 Framework Programme; 814072 Horizon 2020 Framework Programme; 814072 Horizon 2020 Framework Programme; 814072 Horizon 2020 Framework Programme Contributed Indexing: Keywords: Caregiver outcomes; Caregiver values; Cross-country analysis; Culture; Illness beliefs; Informal caregiving; Meaning in life; Motivations and willingness to care; Society Entry Date(s): Date Created: 20240327 Date Completed: 20240328 Latest Revision: 20240329 Update Code: 20240329 PubMed Central ID: PMC10967140

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Cross-country variations in the caregiver role: evidence from the ENTWINE-iCohort study.