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Purpose: Caregiver burden (CB) is typically self-assessed by caregivers. However, an emerging concept is assessment of CB by the recipients of care, i.e., the patient. The specific objectives are (1) to assess the level of agreement between care recipients' and caregivers' view on CB, across financial, physical, emotional, and social domains; (2) to explore two care recipient perspectives: their self-perceived burden (CR-SPB), and their interpretation of the caregiver's view (Proxy-CB).

Methods: Data were collected from 504 caregiver-care recipient dyads in the U.S. using an online Qualtrics panel. The survey assessed caregiver burden using CarerQol and newly developed items. The level of agreement between responses was quantified using weighted kappa (κ) coefficients for individual items and intraclass correlation coefficients (ICC) for index/summary scores.

Results: The average age of caregivers was 49.2 years, and 62.7 years for care recipients. Dyads most commonly consisted of spouses/partners (34.5%); 68.3% lived together. Proxy-CB aligned more closely with caregiver's view, with moderate to substantial agreement across CB domains (from κ = 0.48 for emotional to κ = 0.66 for financial). In the same perspective, the CarerQol-7D Index showed moderate agreement (ICC = 0.58) and the summary score of CB items substantial agreement (ICC = 0.76). Care recipients generally overestimated CB in the Proxy-CB perspective, while they underestimated it in the CR-SPB perspective.

Conclusion: Results demonstrate there is a difference between perspectives. Strong agreement in Proxy-CB perspective suggests that care recipients can potentially substitute for caregivers depending on the domain. CR-SPB agrees less with caregivers and may provide complementary information.

Titel:	Understanding caregiver burden from multiple perspectives: dyadic agreement between caregiver and care recipient.
Autor/in / Beteiligte Person:	Kuharic, M ; Mulhern, B ; Sharp, LK ; Turpin, RS ; Pickard, AS
Link:	Full Text Finder (Volltext)
Zeitschrift:	Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, Jg. 33 (2024-06-01), Heft 6, S. 1719-1734
Veröffentlichung:	2005- : Netherlands : Springer Netherlands ; <i>Original Publication</i>: Oxford, UK : Rapid Communications of Oxford, Ltd, c1992-, 2024
Medientyp:	academicJournal
ISSN:	1573-2649 (electronic)
DOI:	10.1007/s11136-024-03643-x
Schlagwort:	Humans Male Female Middle Aged Surveys and Questionnaires Adult Aged United States Psychometrics Caregivers psychology Caregiver Burden psychology Quality of Life
Sonstiges:	Nachgewiesen in: MEDLINE Sprachen: English Publication Type: Journal Article Language: English [Qual Life Res] 2024 Jun; Vol. 33 (6), pp. 1719-1734. <i>Date of Electronic Publication: </i>2024 Apr 17. MeSH Terms: Caregivers* / psychology ; Caregiver Burden* / psychology ; Quality of Life* ; Humans ; Male ; Female ; Middle Aged ; Surveys and Questionnaires ; Adult ; Aged ; United States ; Psychometrics References: Family Caregiver Alliance. (2016). Caregiver statistics: Demographics. Family Caregiver Alliance. Retrieved May 23, 2023 from https://www.caregiver.org/resource/caregiver-statistics-demographics/. ; Centers for Disease Control and Prevention. (2020). Caregiving for family and friends—a public health issue. Retrieved May 23, 2023 from https://www.cdc.gov/aging/caregiving/caregiver-brief.html. ; Spillman, B. C., Allen, E. H., & Favreault, M. (2021). Informal caregiver supply and demographic changes: Review of the literature. 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Understanding caregiver burden from multiple perspectives: dyadic agreement between caregiver and care recipient.