Quality-of-Life Assessment in Pediatric Advanced Cancer: Development of the Patient-Reported Outcome Measure Advance QoL .
In: Current oncology (Toronto, Ont.), Jg. 31 (2024-04-19), Heft 4, S. 2289-2304
Online
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Zugriff:
A recent measure was developed to assess the Quality of Life (QoL) of young people with advanced cancer and is available for parents and professionals ( Advance QoL ). The present study aimed to elaborate self-reported versions for children and adolescents with advanced cancer. We adopted a four-phase research plan: (1) to elaborate the Advance QoL questionnaire for youth (8-12 and 13-18 years old) with a team of young research partners; (2) to evaluate the understandability of these versions in a sample of 12 young patients from the target population using cognitive interviews; (3) to assess social validity in the same group using a questionnaire and the content validity index (CVI); and (4) to refine the questionnaires according to these results. Four major themes were identified: (1) issues affecting the understanding of the tool; (2) issues that did not affect the understanding of the tool; (3) modifications to improve the tool; and (4) positive features of the tool. Advance QoL was well received, and feedback was positive. Adjustments were made according to young people's comments and two self-reported versions are now available. It is essential to measure the key domains of QoL in advanced cancer. Advance QoL self-report versions will help target the specific needs of young people with this condition and their families.
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Quality-of-Life Assessment in Pediatric Advanced Cancer: Development of the Patient-Reported Outcome Measure Advance QoL .
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Autor/in / Beteiligte Person: | Robichaud, LA ; Felipe, J ; Duval, M ; Michon, B ; Olivier-D'Avignon, M ; Perreault, S ; Tyo-Gomez, M ; Marquis, MA ; Sultan, S |
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Zeitschrift: | Current oncology (Toronto, Ont.), Jg. 31 (2024-04-19), Heft 4, S. 2289-2304 |
Veröffentlichung: | 2021- : Basel, Switzerland : MDPI ; <i>Original Publication</i>: Toronto : Multimed, c1994-, 2024 |
Medientyp: | academicJournal |
ISSN: | 1718-7729 (electronic) |
DOI: | 10.3390/curroncol31040170 |
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