Patient and Family Engagement and Resource Production in Learning Health Networks
2022
Hochschulschrift
Zugriff:
Background: Learning health networks are thought to improve outcomes by enabling all stakeholders to collaborate in the common goal of improving health and care. An important mechanism of action is creation and sharing of resources so that more people can get what is needed, when it’s needed, to act in ways that improves health and health care. We hypothesize that as patients and families engage at a high-level in the network, resources are created.Methods: We evaluated the relationship between resources and engagement in ImproveCareNow, a pediatric inflammatory bowel disease learning health network. We counted patient and family directed resources from imporvecarenow.org, newsletters, and community conferences from August 2017 to December 2021 and used existing behavioral indicators of engagement to track the number of highly engaged patients and families during this time period. Results: Both resources and patient and family engagement increased in ImproveCareNow. There is an association between new resources and new high-level engagement with a cross-correlation of 0.38 at a 1-month lag. This cross-correlation is not significant when excluding community conference sessions. A mean(±sd) of 17.2±8.8 patients and family members were highly engaged in the network per new resource.Conclusions: New resource production and new high-level patient and family engagement are associated in a learning health network, and community conferences are an important factor in the association. Networks need to have many highly engaged patients and family members for new resource production. Further study is needed to determine ways in which individual patients and family members act to produce resources over time.
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Patient and Family Engagement and Resource Production in Learning Health Networks
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Autor/in / Beteiligte Person: | Dunn, Maureen |
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Veröffentlichung: | 2022 |
Medientyp: | Hochschulschrift |
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