تأثیر الگوی توانمندسازی خانواده محور به روش آموزش چندرسانه ای(مالتی مدیا) بر کیفیت زندگی کودکان سن ۱۲-۸ سال بتاتالاسمی در ایران. (Persian)

Background and Aim: There is a correlation between disease and quality of life in patients with chronic disease and physical disorders have a direct effect on all aspects of quality of life. Therefore, this study was conducted to determine the effect of family-centered empowerment model based on multimedia education on the quality of life of children with thalassemia. Materials and Methods: In this experimental study, 120 patients along with their parents, who had medical records at the thalassemia center of Khatam al-Anbiya Hospital in Shoushtar, were selected according to the inclusion criteria and were divided into two groups of intervention and control )n=60( by random allocation. Subjects were matched in terms of age and gender. The data collection tools included Pediatric Quality of Life Inventory )Ped-SQL( and researcher-made questionnaires of awareness and self-efficacy in the area of thalassemia. The collected data were analyzed using SPSS and Mann-Whitney and Wilcoxon statistical tests and Pearson’s correlation coefficient. Results: Out of 120 children who were included in the study, 87 were girls )72.5%(, the mean age of these children was 9.74±2.25 years and disease duration was 5.35±4.47 years. In this study, in terms of children’s quality of life and its dimensions, after the implementation of the educational model, a significant increase was observed compared to pre-test phase only in the intervention group )P>0.001(. After implementing this model, the level of knowledge )P>0.001( and self- efficacy of parents (P=0.003) was faced with a significant increase, and this significance was also observed compared to the control group )P>0.001(. The variables of age, gender, disease duration and parents’ education level had no effect on parents’ self-efficacy and knowledge as well as children’s quality of life )P<0.05(. Conclusion: Based on the results of the present study, the implementation of family-centered empowerment programs based on multimedia education among parents of children with thalassemia improved the quality of life of these children by increasing the knowledge and self- efficacy of their parents. It is suggested that this program be implemented on a wider scale with better facilities for parents and the family members. [ABSTRACT FROM AUTHOR]

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